What you need to know
CFRI publishes data summaries each year in the Annual Data Report. These detailed reports are for people with CF, their families, patient advocacy organisations, governmental agencies, health services, hospitals, health care professionals and researchers.
They include data about diagnosis, growth and nutrition, lung function, episodes of disease worsening, CF-related complications, hospitalisation and estimated life expectancy.
Annual Data Reports have been produced since 2002. The most recent reports are available below.