Recent and ongoing data applications:
| 2022 | |
| CFTR modulator therapy and its impact on glucose abnormalities in patients with cystic fibrosis – an observational study | CHI, CHI Crumlin Hospital |
| Information on allele data in annual report | CF Ireland |
| Oral Health in adults with Cystic Fibrosis | Cork University Dental School and Hospital |
| 2021 | |
| Characteristics of People With Cystic Fibrosis referred for Lung Transplant Assessment over at ten year period 2009-2019 | Mater Misericordiae Hospital |
| Pseudomonas Aeruginosa colonisation with anti-staphylococcal prophylaxis in Cystic Fibrosis | Children’s Health Ireland at Tallaght |
| CFRI data on pregnancy in patients with CF | University Hospital Galway |
| Demographic and clinical characteristics of patients with Cystic Fibrosis and their disease progression before the introduction of cystic fibrosis transmembrane conductance regulator modulator (CFTRm) therapies in Ireland | Vertex Pharmaceuticals Inc |
| Long term real-world impact of ivacaftor on clinical outcomes in patients with cystic fibrosis | Vertex Pharmaceuticals Inc |
| Demographic and clinical characteristics of patients with Cystic Fibrosis receiving lumacaftor/ivacaftor and participating in the CFORMS study | Children’s Health Ireland at Crumlin / CFRI |
| Evaluation of the clinical, psychological, and economic effects of the Cystic Fibrosis New-born Screening Programme: the Irish Comparative Outcomes Study of Cystic Fibrosis (ICOS) Part 2 | University College Dublin / CFRI |
| 2020 | |
| Epidemiology of COVID-19 infection in Irish CF patients | St Vincent’s University Hospital, Dublin |
| Affected CF siblings study | Cork University Hospital |
| CF-related diabetes in CFTR modulator users attending CHI at Crumlin | Children’s Health Ireland at Crumlin |
| CFRI annual patient survey data | Department of Health |
| Deaths in patients born after 1987 with CF-related Liver Disease | School of Medicine & Medical Science, University College Dublin. |
| 2019 | |
| Prevalence of Pseudomonas aeruginosa in CF patients attending CHI at Crumlin | Children’s Hospital Ireland at Crumlin |
| 2018 | |
| Effect of DNase on longitudinal lung function in patients with cystic fibrosis | St Vincent’s University Hospital/CFRI |
| The Epidemiology of People with CF and Residual Function CFTR mutations | Vertex Pharmaceuticals Inc |
| 2017 | |
| Haemoglobin differences between CF and general populations | Dartmouth-Hitchcock Medical Centre, New Hampshire, USA |
| Epidemiology of CF | CF Ireland |
| Co-colonisation with Aspergillus fumigatus and Pseudomonas aeruginosa and its association with poorer health outcomes | Tallaght University Hospital/Trinity College Dublin |
| The prevalence of Pseudomonas aeruginosa infection in CF patients attending the care in Crumlin Hospital in 2004 compared with 2014 | Children’s Hospital Ireland at Crumlin |
| Understanding exacerbations in CF | St Vincent’s University Hospital, Dublin |
| 2016 | |
| Irish Comparative Outcomes of Newborn Screening | University College Dublin |
| Cystic Fibrosis Liver Disease | University College Dublin |
| Prevalence of atypical mycobacteria | Mater Misericordiae University Hospital |
| Aspergillus infection/colonisation pre-and pos-lung transplantation | Mater Misericordiae University Hospital |
| The epidemiological, clinical and genetic aspects of chronic pancreatitis in Ireland | Tallaght University Hospital/Trinity College Dublin |
| Real-world evidence for ivacaftor in 2013 | Health Service Executive |
| Number of people with CF eligible for ivacaftor | Vertex Pharmaceuticals Inc |
| 2015 | |
| Prevalence of a rare mutation | University Hospital Limerick |
| Burkholderia cepacia complex epidemiology | St Vincent’s University Hospital |
| CF patient diagnosis by meconium ileus | The Children’s University Hospital, Temple Street |
| Prevalence of CF genotypes | CF Ireland |
| Number of patients by province | CF Ireland |
| Obesity in CF patients | St Vincent’s University Hospital |
| Co-infecting microbes | Tallaght University Hospital/ Trinity College Dublin |
| Atopy in CF | Children’s Hospital Ireland, Crumlin |
| Clinical correlation between different bacterial/fungal infections and CF genotype in regards to lung function, exacerbation frequency and CF-ABLE score | Royal College of Surgeons in Ireland/Beaumont Hospital |