Recent & ongoing applications

Recent and ongoing data applications:

CFTR modulator therapy and its impact on glucose abnormalities in patients with cystic fibrosis – an observational studyCHI, CHI Crumlin Hospital
Information on allele data in annual reportCF Ireland
Oral Health in adults with Cystic FibrosisCork University Dental School and Hospital
Characteristics of People With Cystic Fibrosis referred for Lung Transplant Assessment over at ten year period 2009-2019Mater Misericordiae Hospital
Pseudomonas Aeruginosa colonisation with anti-staphylococcal prophylaxis in Cystic FibrosisChildren’s Health Ireland at Tallaght
CFRI data on pregnancy in patients with CFUniversity Hospital Galway
Demographic and clinical characteristics of patients with Cystic Fibrosis and their disease progression before the introduction of cystic fibrosis transmembrane conductance regulator modulator (CFTRm) therapies in IrelandVertex Pharmaceuticals Inc
Long term real-world impact of ivacaftor on clinical outcomes in patients with cystic fibrosisVertex Pharmaceuticals Inc
Demographic and clinical characteristics of patients with Cystic Fibrosis receiving lumacaftor/ivacaftor and participating in the CFORMS studyChildren’s Health Ireland at Crumlin / CFRI
Evaluation of the clinical, psychological, and economic effects of the Cystic Fibrosis New-born Screening Programme: the Irish Comparative Outcomes Study of Cystic Fibrosis (ICOS) Part 2University College Dublin / CFRI
Epidemiology of COVID-19 infection in Irish CF patientsSt Vincent’s University Hospital, Dublin
Affected CF siblings studyCork University Hospital
CF-related diabetes in CFTR modulator users attending CHI at Crumlin Children’s Health Ireland at Crumlin
CFRI annual patient survey dataDepartment of Health
Deaths in patients born after 1987 with CF-related Liver DiseaseSchool of Medicine & Medical Science, University College Dublin.
Prevalence of Pseudomonas aeruginosa in CF patients attending CHI at CrumlinChildren’s Hospital Ireland at Crumlin
Effect of DNase on longitudinal lung function in patients with cystic fibrosisSt Vincent’s University Hospital/CFRI
The Epidemiology of People with CF and Residual Function CFTR mutationsVertex Pharmaceuticals Inc
Haemoglobin differences between CF and general populationsDartmouth-Hitchcock Medical Centre, New Hampshire, USA
Epidemiology of CFCF Ireland
Co-colonisation with Aspergillus fumigatus and Pseudomonas aeruginosa and its association with poorer health outcomesTallaght University Hospital/Trinity College Dublin
The prevalence of Pseudomonas aeruginosa infection in CF patients attending the care in Crumlin Hospital in 2004 compared with 2014Children’s Hospital Ireland at Crumlin
Understanding exacerbations in CF St Vincent’s University Hospital, Dublin
Irish Comparative Outcomes of Newborn ScreeningUniversity College Dublin
Cystic Fibrosis Liver DiseaseUniversity College Dublin
Prevalence of atypical mycobacteriaMater Misericordiae University Hospital
Aspergillus infection/colonisation pre-and pos-lung transplantationMater Misericordiae University Hospital
The epidemiological, clinical and genetic aspects of chronic pancreatitis in IrelandTallaght University Hospital/Trinity College Dublin
Real-world evidence for ivacaftor in 2013Health Service Executive
Number of people with CF eligible for ivacaftorVertex Pharmaceuticals Inc
Prevalence of a rare mutationUniversity Hospital Limerick
Burkholderia cepacia complex epidemiologySt Vincent’s University Hospital
CF patient diagnosis by meconium ileusThe Children’s University Hospital, Temple Street
Prevalence of CF genotypesCF Ireland
Number of patients by provinceCF Ireland
Obesity in CF patientsSt Vincent’s University Hospital
Co-infecting microbesTallaght University Hospital/ Trinity College Dublin
Atopy in CFChildren’s Hospital Ireland, Crumlin
Clinical correlation between different bacterial/fungal infections and CF genotype in regards to lung function, exacerbation frequency and CF-ABLE scoreRoyal College of Surgeons in Ireland/Beaumont Hospital

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