An annual report is produced each year.
This report is comprehensive, accessible, widely distributed and available on this website.
The following table is intended to give an idea of the type of report which can be generated by the database.
| Type of Report
| Contents
| Accessible to
|
| Individual Patient Reports |
- Personal details
- Most recent update, i.e., Annual Assessment
- No. of hospitalisations and exacerbations in last period
- Cultures in last period
- Antibiotics in last period
- Lung Function in last period
- Other Treatments in last period
- Social Summary
|
Consultant to the patient. |
Consultant Patient Reports
(i.e., all patient summary for a particular Consultant)
|
- List of patients on Registry
- Method of diagnosis of all patients
- Genotypes of all patients
- Hospitalisations & exacerbations in last period: all patients
- Transplant status: all patients
- Total cultures in last period and type of culture: all patients
- Antibiotics in last period
- Other treatments in last period
- Vaccinations in last period
- Swachmann Scores summary
- Social summary
|
Consultant of his patients ONLY |
Global Patient Reports
All data in this section of Reports will be Anonymised
|
- Total number of patients enrolled, mean age, gender split, etc.
- Summary of genotypes
- Diagnostic method summaries
- Complications and rates in previous 12 months
- Total number of hospitalisations, exacerbations, transplant status
- Means for age groups, height, weight, BMI
- Numbers of cultures and types of cultures
- Antibiotics: number of courses, IV or oral, intermittent, prophylactic, etc.
- Nutritional treatment summaries
- Physiotherapy summaries
- Other drug treatment summaries
- Swachmann score summaries over age groups
- Social data summaries
|
Users of this data will be approved by the Executive Council after review of submitted protocol. |
| Chief Executive Reports |
- Distribution of patients by Consultant, hospital, region
- Age distribution and other demographics
- Transplant status summaries
|
Chief Executive ONLY |
There is a wealth of information that can be gleaned from the CFRI.
Much of this information will be summarised and included in each Annual Report.
Further analysis of the data will be done through various research projects under the guidance of experienced epidemiologists.