European CF Society Patient Registry

The CFRI contributes anonymised data to the European CF Society Patient Registry (ECFSPR). The ECFSPR has data from more than 48,000 people with CF, from 35 participating countries, and data from 2008 to 2017. It is a unique resource reflecting the reality of CF across Europe. It publishes a data report annually that can be accessed here. Research papers prepared using European CF registry data are available here.

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