Governance

Ensuring effective & responsible registry operation

The CFRI is a not-for-profit Company Limited by Guarantee with a Constitution of its own and registered charity status. A Board of Directors, made up of healthcare professionals involved in CF care and patient representatives oversee the management of the registry.

A Scientific Research Committee, made up from CF medical care teams, is responsible for the release and use of any data from the registry. Names, addresses and other information that could be used to identify participants are kept strictly confidential and are not available to those analysing the data.

Board of Directors

Prof Ed McKoneChairpersonConsultant in Respiratory Medicine, St. Vincent’s University Hospital, Dublin
Prof Cedric Gunaratnam Vice ChairpersonConsultant in Respiratory Medicine, Beaumont Hospital, Dublin
Dr Marion RowlandSecretaryLecturer, UCD School of Medicine & Medical Sciences
Mr John ColemanTreasurerPatient Representative
Prof Peter GreallyConsultant in Paediatric Respiratory Medicine, Tallaght University Hospital
Prof Gerry McElvaneyProfessor of Medicine, Royal College of Surgeons in Ireland &  Consultant in Respiratory Medicine Beaumont Hospital, Dublin
Prof Paul McNallyConsultant in Paediatric Respiratory Medicine, Children’s Hospital Ireland at Crumlin
Dr Barry LinnaneConsultant in Paediatric Respiratory Medicine, University Hospital Limerick
Prof Barry PlantConsultant in Respiratory Medicine, Cork University Hospital
Mr Philip WattChief Executive, CF Ireland

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