Ensuring effective & responsible registry operation
The CFRI is a not-for-profit Company Limited by Guarantee with a Constitution of its own and registered charity status. A Board of Directors, made up of healthcare professionals involved in CF care and patient representatives oversee the management of the registry.
A Scientific Research Committee, made up from CF medical care teams, is responsible for the release and use of any data from the registry. Names, addresses and other information that could be used to identify participants are kept strictly confidential and are not available to those analysing the data.
Board of Directors
|Prof Ed McKone||Chairperson||Consultant in Respiratory Medicine, St. Vincent’s University Hospital, Dublin|
|Prof Cedric Gunaratnam||Vice Chairperson||Consultant in Respiratory Medicine, Beaumont Hospital, Dublin|
|Dr Marion Rowland||Secretary||Lecturer, UCD School of Medicine & Medical Sciences|
|Mr John Coleman||Treasurer||Patient Representative|
|Prof Peter Greally||Consultant in Paediatric Respiratory Medicine, Tallaght University Hospital|
|Prof Gerry McElvaney||Professor of Medicine, Royal College of Surgeons in Ireland & Consultant in Respiratory Medicine Beaumont Hospital, Dublin|
|Prof Paul McNally||Consultant in Paediatric Respiratory Medicine, Children’s Hospital Ireland at Crumlin|
|Dr Barry Linnane||Consultant in Paediatric Respiratory Medicine, University Hospital Limerick|
|Prof Barry Plant||Consultant in Respiratory Medicine, Cork University Hospital|
|Mr Philip Watt||Chief Executive, CF Ireland|