Using CFRI data to better understand CF

CFRI and its approved researchers produce high quality research that will advance the field of cystic fibrosis epidemiology. The research undertaken is scrutinised by experts in the field in a process known as peer review, which is the foundation of the scholarly publication system.

Peer-reviewed articles published by the CFRI are below. The CFRI contributes to European CF Society Patient Registry peer-reviewed articles.

  • Estimating Direct Cost of Cystic Fibrosis Care Using Registry Healthcare Resource Utilisation Data, 2008-2012. Pharmacoeconomics, 2017.
  • Co-colonisation with Aspergillus fumigatus and Pseudomonas aeruginosa is associated with poorer health in cystic fibrosis patients: an Irish registry analysis. BMC Pulmonary Medicine, 2017.
  • Non-pulmonary chronic disease in adults with cystic fibrosis: analysis of data from the Cystic Fibrosis Registry. Irish Medical Journal, 2013.
  • Validation and use of a parametric model for projecting cystic fibrosis survivorship beyond observed data: a birth cohort analysis’. Thorax, 2011.

Unlocking The Potential Of Patient Registries: A Guide For Success, which was co-authored by CFRI, is available from the Health Research Charities Ireland website.

A practical guide to developing patient registries in Ireland, which was co-authored by CFRI, is available from the Medical Research Charities Group website.

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